September 28, 2005

Home again, Home again

We're home, all three of us.

It's not Strep. It's not Kowasaki. They don't what it is, just some virus. And all the doctors sing the same song (Doo-wop, Doo wop) that 6 days of 104-ish temperatures are not normal.

They pulled fluids, are running some tests. But the upshot is that they let us take Bear home. (If his fever climbs again, or if he's not better by Friday, or if he gets one of 2 freaky rashes, then it's back to Children's.)

Bear is curled up with his dad in front of Scooby Doo. Thank God for our blessings. And thank everyone for the good thoughts and prayers. I don't think we've ever been so scared in our lives, and I can't begin to describe what it means to know that people are so kind.... (oh, can't talk. I'm verklempt.)

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Road Trip

Well, we're off to the hospital.

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September 27, 2005

Positively Zen

I'm begining to feel like a walking train wreck.

My new manager called to inform me (while on leave to take care of my son!) that he was temporarily demoting me. Only in title. It's hoped by those "on high" that this would calm the crazy customer who, despite my project being in Green Status and on time and budget, has asserted that he doesn't feel like I understand his priorities.

Internal customer, mind you. We all work for the same company. Oh, and same rank as me. But let's put a pin in that.

My Executive told him that people don't get changed around on her team because of feelings. She demanded that he provide some kind of paper trail showing that I was doing a poor job.

Of course, no such paper trail exists.

Then, out of the other side of her mouth, she told my manager to demote me. Keep my pay, responsibilities the same. Just get me out of the guy's sight.

So, back where we started. My manager called to inform me...

After a moment of disbelief, I got good and pissed. He told me that I should take some time to think about it, since I was tired and had "family distractions". I told him that if he attempted to demote me, in any way, that I would go to the mats. I would go to HR, I would go to my operational management, and I would go loudly. That he better be bulletproof, because no one was messing with my professional career and reputation.

Wow, he said. I admire your spunk.

Yes. He really said that.

Meanwhile, we took Bear off the meds to see if he'd turned the corner.

His temperature is 104.9.

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The Heat Came Back, The Very Next Day...

Bear's 103~104ish (f) degree fever has persisted now since begining on Friday.

I've learned more about childhood fevers in the last few days than I thought there was to know. Turns out that the fever itself is not a bad thing, and may be a tool Bear's body is using to fight whatever infection he has. And when he gets a drop in temperature (thank you, Tylenol), he becomes "himself" again - talking, joking, wanting to read stories.

But then the heat comes back. He fades away, before our very eyes. At the doctor's office, "New Doctor" (ND) heard a heart murmur that she says should go away once he is well. More than that, his hands shake, he gets a couple of red spots, he whimpers, he vomits.

The ND says this is OK - not dangerous. Yeah, but that shaking and whimpering looks scary to us. It rips our still-beating hearts from our body as we cling to the side of his bed, whispering to him that everything is going to be OK.

Then we slip him some more Tylenol and walk on eggshells until it kicks in.

The problem here is that we're on Day 5 without a known cause (other than a fair belief that it is not Meningitis) or an end in sight. If he doesn't turn the corner soon, then it's off to the hospital.

I got this from the Blue Cross site:

My child has a fever and no other symptoms. What's wrong?

When a child has a high fever that isn't accompanied by a runny nose, a cough, vomiting, or diarrhea, figuring out what's wrong can be difficult. Some viral infections, such as roseola, cause three days of very high fever followed by a rash of small red bumps. More serious infections, like meningitis, urinary tract infections, or bacteremia (bacteria in the bloodstream), also may trigger a high fever without other symptoms. But infections aren't the only triggers for fever; tumors, autoimmune diseases, and certain drug reactions can cause it. For these reasons, call your pediatrician if your child has a high fever but no other symptoms.

Yeah, we're all kinds of calm.

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September 26, 2005

The Lost Weekend

I spoke too soon, about the bad week being over.

Friday afternoon, and as I pulled into the mall parking lot Bear started to complain about tingling poking feelings in his legs. Next thing we knew, we were hustling out of Lowes with a son with red cheeks and glassy eyes.

His fever has hit 104 several times and his only other symptom was sleepiness and a headache. We started grappling with the fear that something might really be wrong.

The on-call doctor said if his fever didn't break then we needed to bring him into the hospital - possibly for a spinal tap to rule out Meningitis. At the last minute, his skin grew slightly cooler. Within the hour, his temp had dropped a few degrees and he was looking like his old self.

Reprieve.

But then last night the scary heat came back.

I won the coin toss, so I stayed home with him today. CD is at work, half asleep on his keyboard. I'm not much better, but the only one relying on me is Bear. Who has had a tall glass of fresh-squeezed orange juice and some Motrin and is actually playing right now in a (you guessed it) nest on my bed.

In a couple of hours, we're heading over to the doctor's. The NEW doctor.

Trial by fire.

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September 23, 2005

The Letter

bearandCD.JPG It's been a tough week - the low point being last Friday, when Bear's pediatrician called him 'obese'. For the record? She wasn't looking at him at the time, she was looking at something called a "BMI Chart". A tool she had not explained to us; with flaws she did not discuss. Which, on top of everything else, she used improperly.

First we dealt with the fallout to Bear (he was actually very reasonable in accepting that the doctor wanted to make sure he ate the right foods. He is pretty confident in his choices, but agreed that we could cut down the french fries.)

Then we dealt with our personal fallout. I can't speak for CD, but what kept me churning was that I had known she was wrong, but didn't do anything to stop her.

My regret is that I should have stopped her, you know? I should have interrupted her bad self and gotten my son out of there. I should have scrawled "Respect" on a sign and jumped up on the reception desk, holding it aloft.

I am ashamed of myself for not fighting back in the moment.

And?

I am ashamed of her.

Today I wrote a letter, explaining to her and to all the doctors in her practice why we will no longer be using their services. I mentioned that we were discussing it - me and the parents of the 22 other children at Bear's party - and discovered that lo! and behold! there were two other parents that had quit the same practice for similar reasons. And one other parent who was using the practice but got recommendations for another one based on our conversation.

I said that a doctor of children has a special responsibility to see children as individuals. To model and teach them respect for themselves, and pride in good health - which is not a number but a state of being.

I said that my son was not a pig at the fair to be weighed, measured and talked over. And that if a practice of doctors dedicated to children thought that was acceptable, then I would challenge each and every one of them to look deep in their hearts about their choice of profession.

Before they went bankrupt.

Or worse, did more damage to the patients in their care.

All that's left now, is to find a stamp.

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September 22, 2005

One more for the road

ElizabethandBrother.JPGSince his older friends are begining to lose their teeth, Bear has a lot of questions.

Today I dug up this old picture of me (and my brother) and showed him how even his mommy lost her baby teeth, once upon a time.

(See, Bear? Nothing to be afraid of. See how I have a lost tooth in the picture but look at my mouth now... it grew in!)

Bear looked at the picture.

Then at me.

Bear: Is this really you?

Me: Yes, Bear, of course.

Bear: Wow. You got WAY more older. I mean, way way way way way...

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September 20, 2005

This Moment

Bear9months.JPGI remember the first time he tried CD's infamous ketchup spaghetti. I was sure Bear had more sophistication, even at 9 months old, than to like it.

I was terribly, terribly wrong.

Turns out, like his father, he thinks ketchup is a food group.

I never thought I would forget that day. When he grabbed chopped-up strands of pasta with two chubby, fumbling hands and shoved the food in the general direction of his mouth.

Oh! We exclaimed. The coordination! The concentration! Our boy, he is a genius!

See the way he gets almost some of it in that mouth?

And about the 3rd helping, we cut him off. Wondering what so much of a new food would do to his immature system. He tried screaming, shouting, and grabbing. And then he sadly realized that there would be no more.

Seems like yesterday.

It is going too fast, Bear's childhood.

BearBDay.JPGSunday was his first big-boy birthday party. He'd picked a local children's gym and invited everyone I would let him invite.

It was a great party.

A party attended by kids of all shapes, colors, genders, and sizes.

Differences that are, to Bear, nothing. Because my son doesn't know there is a world that says otherwise. (And idealistically, I wish he never does)

All he saw were friends.

My son is 5. And he is amazing.

He jumped, and balanced, and climbed with the rest of the kids. He was a copper-haired blur, laughing and stretching and running. He climbed up onto the edge of the ball pit, and dove in - fearless and giggling.

He radiated joy.

And I realized, in this moment, the world he knows is fair and just. People in trouble are helped. People in danger are protected. People hurt are all given the best healing available. And bad guys wear distinctive clothing so you know which ones they are.

In this moment, littering is a serious crime.

In this moment, my son loves everything about himself. His parts and his thoughts delight him. His own opinion of himself is strong and confident and happy. He shows and expects respect.

In this moment, my son has faith in Santa Claus and the Yule Elves. He is entranced by fireflies and rainbows and hermit crabs. He dances whenever there is music. He sings whenever he knows the words. His mistakes leave no scars only lessons.

And at one point he came running out of the gym to get himself some water. As he gulped, he leaned against me.

And I held firm in my spot, to support him.

He knew I would. He counted on me to.

Because I am Mommy.

And then he ran off again.

I guess i have been obsessing on what the doctor said last Friday, and that I have somehow put my son's health at risk. Because Dee walked up and wrapped her arm around me and whispered in my ear to look around. To register that Bear looked just like the rest of his friends. To accept, once and for all, that my mother's compass knows True North and it is OK to tell even an upscale doctor that they are full of it.

I nodded, and wiped away the tears.

"Elizabeth, look around," she urged. "See Bear? See him? See how healthy, and happy he is? See his world? See this moment?"

And as embaressed as I was to be weeping up at my son's big boy party... I understood.

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September 16, 2005

Hello, I'm your pediatrician. You'll be firing me today. And maybe suing me.

Crappy week just took a nosedive. One of my favorite bloggers was in town, and I missed meeting him (argh!) because, you know, it was one thing and then another. And then it was Bear's 5-year checkup at the swanky, prestigious, downtown pediatricians' practice that we still use even though we moved out of the city 4 years ago.

Before I talk about what happened, I want to share my son with you. These are two pictures of him, taken in the last couple of months. One helping his dad, CD, push a lawnmower while wearing his special superhero helmet. Another pretending to be a jet plane in crazy game of tag with a bunch of friends at a park.
bearbiggi.jpg
Bearplane.jpg
This gorgeous redhead? Is Bear.

So the pediatrician does all the normal things at first: height, weight, blood pressure, and a solid inventory of parts. She scolds us because Bear can not recite his full name, address, and phone number on demand - most of which he knows but he was acting a little frozen.

Then she sat down and began talking about food choices. We explained that Bear was a picky eater and, in fact, we supplement his meals with a vitamin drink as was recommended to us a couple of years ago. (Bear chimed in with his favorite foods - carrots, apples with peanut butter, watermelon, pasta, meatballs, french fries, lingonberry jam (yes, he's Scandavian), pancakes and sausage, and grapes).

She sighed, and, ignoring Bear's list, pushed us about how we feed Bear. She wanted to know about the fats we give him, the sugars, and the starches. She gave me a fake smile and asked about the amount of butter we used on Bear's bagel - and Bear explained he hated butter and ate bagels plain.

We could all tell something was wrong, and grew tense.

Then she started talking about how Bear had gained more weight last year than he had grown in height. I looked at her, confused. She looked me up and down. And then she told me that we needed to stop making irresponsible choices for Bear. That annual BMI (Body Mass Indicators) tracking is now recommended by American Academy of Pediatrics. And that it was showing scientifically the undisputed fact that Bear's BMI number is (I just had to double-check) 16.7, which is 80% and thus Bear is obese.

CD and I gave each other a confused look, and then CD took Bear out of the room.

I babbled that I didn't understand. That Bear is extremely active, wears normal sizes, and that except for a little pudge on his tummy that goes away at each growth burst and big chipmunk cheeks (which are a genetic trait in my family) - he is, (in my completely objective opinion) ... perfect.

She gave me a stern look.

I tried to rise above the dread like a rock chafing my guts.

I explained that we had carefully avoided making food a battle ground, that we let him not only have input into his meals but also a responsibility in helping prepare them. That we severely limit convenience foods except on rare occasions. That we still use a small salad plate for him, so his portions are the right size. That he looks the same now, in proportions, as he has since he was 2 - and the same as most of the kids in his class.

I was babbling, and finally she interrupted me.

It was clear she felt that I had nothing valuable to say - I am overweight and I would, OBVIOUSLY, make my child overweight unless she stepped in and managed the situation. (And while we're making me the demonic pusher of fat, let's also ignore my tall, healthy husband and his influence completely).

The doctor then explained that she was prescribing a low-carb diet for Bear (for a 5 year old!) and wanted him back in her office in 3 months to make sure he had either stopped gaining or was losing weight.

On the way home, I wondered if I was just upset because I didn't like what the doctor had to say to the point that I might be rejecting a very important diagnosis. So in the car home, I called two family doctors and a noted child psychologist - all of whom know Bear.

They each consoled me that my son is in perfect health. That BMI's on children - especially as young as 5 years old - are flawed at best and that a respected panel had said so just a few months ago.

They pointed out that Bear is active, strong, healthy, has a stable body type, good eating habits, and emphatically re-iterated to me that he is NOT obese.

That there IS an alarming trend of overweight children in America who forge poor habits at a young age and then have to struggle with lifelong issues. But that Bear is FINE - in fact, the rosy picture that pediatricians should be striving for - no issues one way or another.

(Me? I was a perfectly active, healthy, and small kid. Got my bad habits the old-fashioned way. In college.)

I heard what they were saying, and it echoed what both CD and I feel in our gut. But it didn't stop me from crying, and hanging on to CD, and asking him if I'd been a bad mother for not pushing more steamed fish on Bear.

That pediatrician is SO fired. How could someone say these things? How? WHat gave her the right to be.... like that???? I mean, isn't my child supposed to be more individual than the current hysterical trend????

Excuse me, I am still so upset I want to scream.

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September 14, 2005

Guilt

Bear got sad today, telling me how much he would miss the our "Big Blue House". He's listed the things he doesn't want to leave, and it's been just gutting me.

On the one hand, he is eager to go.

On the other, he clings to it all - because it is all he is ever known.

So tonight found me, sitting on the kitchen floor crying. I was frustrated, unable to find the cheese shredder. Because I have the worst kitchen in Illinois. The thing only has two cabinets, with narrow openings, and I can never lay my hands on anything without pulling out a pile of stuff. And it's just been a day, you know? A day. And I cheered myself up thinking about a new kitchen and being able to cook - really cook. And not race out to a restaurant at the least possible provocation.

Then I looked at my sad, forlorn son. Telling me how much he was going to miss the tree in our yard.

And now guilt is flowing through my veins.

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September 12, 2005

Revisiting the nest...

We made the decision recently to cut back the hours of Elia, our longtime babysitter.

CD changed his work schedule to 7AM-3PM, which means that I am now doing both drop-off (8:20AM) and pick-up (11:30AM) at Bear's Montessori (as well as picking up Elia on the way home).

That will reduce Elia's daily appearance from 6+ hours to 4 hours a day. Writing it down makes it seem like a lot of work for a little payback, but in addition to the monetary savings (about $350 a month) there is the flexibility for Bear's schedule (Elia doesn't drive, which means those afternoon playdates with his classmates were rarely something I could agree to) as well as the overall goal of lessening Bear's dependance on "MyElia", as he calls her.

Between her other job at her brother's restaurant and her new boyfriend, Elia readily agreed to the reduction of hours and offered to stay flexible if we needed it. So this morning began the new schedule...

At 6:30AM, CD carried Bear from his bed into our bed and set the alarm for 7:30AM. He kissed us both and headed out the door.

For the next hour, I found myself snuggled, climbed on, patted, and tickled as Bear enjoyed being in the "big bed" in the morning. (So much for sleep). At one point, I got up and visited the bathroom. As I stepped back into my bedroom, I saw that Bear had confiscated all the pillows, except one left for me. He'd built a fort for himself, his blue eyes peeking above the top.

I collapsed in laughter.

It has been a while since the Bear built a nest.... more...

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September 06, 2005

On The Day Your Were Born

Soon enough, I will talk about how we went househunting and crunched numbers this weekend. How we celebrated the end of the summer. How a room finally got walls, and how fragile a trust can be. How we continued to wait on pins and needles. But now? Now is for something more important....

Because today is the anniversary of a miracle.

This is the story we tell every year on this day. You may remember it from last year. But of course, the telling changes a little as the years go by.... more...

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