August 16, 2007

Sometimes Bad Things Go Away (for a while)

It was Bear getting sick, that forced me to evaluate my choices in life.

When his fever broke, I thought 'Oh, he's ok now.'

But he wasn't.

The next 18 months, Bear kept getting cold after cold and constant torturing headaches.

The triumvirate of his doctor, CD, and I suspected that he was showing some new and persistent allergies. We live in an old, crumbling house - so, mold, dust, dander, and sloth ("sloth's" a thing, right?) are our longtime companions.

But despite some relief from your usual allergy medications, Bear's quality of life (and our worry levels) was suffering. So guessing had to give way to knowing so we could treat him better.

Last March, we began making trips to Children's Memorial Hospital in downtown Chicago for tests.

Specialists, Neurologists, MRI, blood tests, name it. We held his hand and prayed in test after test, surrounded by other children and other parents all praying and holding too.

The initial results came back: mildly allergic to mold and dust and pollens. Doesn't have an alphabetic list of really scary things. Had a profound sinus infection of unknown cause, and probably what was triggering the sever pediatric headaches.

The family doctor and CD and I put a stop to the testing at that point. Hoping there wasn't something else hiding under the bed, we took on 7 medications for what we now knew to be real.

And Bear's quality of life has steadily improved.

Yesterday, we did a follow-up. He's covered in strange bugbites (which are probably the strange bugs that just invaded Chicago but in case not, meant a script to ward off Lyme Disease), he's got purple and orange bruises from sundry activities, and there was the 'opting out' comment from sports camp.

She talked to him about that and then told us that the fact that Bear had had a great time at camp and had asked to go back for all 3 sessions this summer was a very good sign.

That if he was overwhelmed during things like dodgeball ('Dodgeball's just nuts,' she laughed. 'I wouldn't play it either.') he was finding ways to cope with that and still enjoy the other things he enjoys - like obstacle course races and king of the hill.

She looked at the bruises, bites, up the nose, and between the toes.

Listen, Elizabeth
, she said, suddenly serious.

I put my hand over my heart and waited to hear the worst.

I've never seen him so healthy. she said. He looks like a kid should at the end of a busy summer. Then she turned to him. Any complaints? She asked. How about the headaches? Fewer? More?

Bear shrugged. I don't get headaches anymore, he said.

Our eyes locked over his head. I hadn't even realized, but then I did.

She looked down at his chart: height and weight are normal, his sinuses are completely clear, headaches abated, even the rough toes that bled from an allergic reaction to his Crocs are healed up.

You've been taking great care of him, kiddo, she said to me with a smile after she'd congratulated him for being so healthy.

I nodded, slowly.

Bear took my hand and we scrambled down the hallway and out to the parking lot and into the van.

Mommy? he called from the backseat. I'm buckled in. Let's go.

I nodded, slowly.

Mommy? Are you crying?

I shook my head. No, I'm... fine. We're fine, sweetie.

I started the engine to prove the point.

But it was a lie.

I know that a single good exam doesn't mean it's all cupcakes and roses from now on. I do.

But..... uh, well, when it's the first good exam in almost 2 years. So damn it, yeah, maybe I did cry a little. And maybe I still am.

(If only all those other families at Children's could have this moment, too...)

april07karatetournament.jpg
Bear doing a crescent kick at June's Karate/TKD tournament.


maybearsara07.jpg
Do you see a puppy in that bed? I don't see no puppy...

tballjune07.jpg
Waiting for his 'Ups' during a t-ball game.

holidayworld07.jpg
About to win a really big honkin' monkey at HolidayWorld, Mo.

Posted by: Elizabeth at 04:22 AM | Comments (9) | Add Comment
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August 07, 2007

Sitting it out

Bear has been attending a Sports Camp this summer a few days a week. To afford it, we killed a fatted calf and left burnt offerings before the Parks & Rec. department.

After a brief police investigation, we discovered that money was actually the preferred mode of payment.

Lessons learned.

Bear loved the camp so much that we signed him up for all 3 sessions.

I would stop in an watch him, on occasion. Racing around on the field or playing dodgeball in the rec center. Pick him up and he'd be dirty, sweaty, and smiling. He seems to be well liked by the campers and the counselors.

So I thought... 'This Is Good.'

Then, yesterday afternoon, I was picking him up when the head counselor walks up to us. The head counselor looks a little like a young Cal Ripken Jr., so I'll call him Cal.

"Uh, he sits out. A lot," Cal told me.

I looked over at Brandon, Bear's favorite counselor. Brandon wouldn't meet my eyes. Neither would Bear.

"What do you mean?" I asked, confused.

Turns out, all summer Bear has been going off by himself during certain activities and playing in the dirt or sand.

"This has been going on all summer?"

"I probably should have told you, before," Cal said. I nodded.

It is the Last Week of camp. This information would have been helpful, you know, ANY TIME earlier.

"But it was really bad today," Cal told me.

Brandon nodded.

Bear looked at his feet.

If you add the ages of Brandon and Cal and my cat and some random strangers together, you still won't get legal drinking age. OK, maybe you will, but only if my cat buys.

Cal was clearly struggling, because Bear's behavior didn't fall into a black or white category. It had just crossed some invisible line the counselors had for participation.

After he'd made his announcement, Cal was clearly waiting for something from me, but I didn't know what.

"Bear, what's going on?" I asked softly.

He shrugged.

"He's an only child..." I said, as sort of a half-explanation.

Cal shook his head. "So am I."

That dropping sensation was in my gut, but Cal had nothing more to tell me and Brandon and Bear were looking at their respective shoes. Still.

Fascinating shoes.

I smiled and said "Well, we have to get going to a dentist's appointment, so..."

Bear has always excused himself and gone off when he's been overwhelmed at things like loud birthday parties and chaotic school functions (he did it once when I was being room mother during a Halloween party - when I tried to get him back with the group, he told me he had a headache and went to a quiet corner and colored.)

I don't know if we say 'Hey, you have to stay with your group/team even when you feel overwhelmed' OR if we say 'Well, Cal, he does that when the chaos gets to him. No big deal.'

Bear is doing very well in Karate and in swimming lessons. He's enjoyed the crazy loud insanity of the tournaments (although we do keep our presence to a minimum).

Then again, this has been a hard summer for Bear at home - the kitchen ripped out, the boxes piling up with our stuff in it, and CD and I more often than ever before pulling into private huddles to discuss things away from him.

But he also has this new puppy, Sara, who loves him to distraction.

I just don't know if I should be worried.

Posted by: Elizabeth at 01:15 AM | Comments (8) | Add Comment
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